Sunday, February 21, 2010

Radiation Photos...and what I look like now

I AM FINISHED! No more radiation for me...ever. Radiation is a "one shot deal" meaning that even if the cancer comes back, it will have to be treated another way. Not that we are focusing on the cancer coming back...because it's NOT. With all the people praying for me, it wouldn't dare!

Now, don't be scared by some of the photos that I am posting. We wanted to get some photos of the radiation process, my lovely mask, and what I look like now that radiation is completed. They aren't exactly the most flattering pictures. Even though these past couple of weeks weren't exactly the best of times, we still want to remember all that we can from what God taught us and how He healed me.

First off, a few photos of how cancer took over our home. The counter next to the sink and the cupboard above was overflowing with meds, syringes, Ensure, vitamins, and yes even lovely items like Maalox and Milk of Magnesia. What can I say, cancer isn't exactly glamorous! You see all those red bottles in the cupboard? All mine. See the bottles full of morphine? Mine. Boxes of fentanyl patches? Yeah, mine. Everything here is mine. And all were used on a daily basis. I still have lost track of how many prescriptions I am on.
And then the dresser in the bedroom, where my nightly meds were dispensed and my dressing on my feeding tube was changed. Every night, Nurse Jason would transport all of my needed meds upstairs and keep my chart updated. He's the best male nurse in the world!This is the radiation room where I spent M-F, 15 minutes per day for almost seven weeks. That is my mask laying on the table. The radiation lights would surround me and rotate throughout the sessions.
Here I am being lifted closer to the lights on the fancy schmancy table.
And this is the creepiest picture of all. This is me strapped into my mask. Can you see now why I would struggle with claustrophobia?? You can see the curve of my nose and then there is a mouthpiece underneath the mask that is holding my mouth open and my tongue perfectly still. I kinda look like a corpse, don't I? The hard, plastic mesh is pushed up directly on to my skin. I usually had "waffle face" when I was finished.
This was me after a few days of treatment and into second week of chemo. Just starting to burn and have sore lips, but really doing just fine.
And this is me now, red beard and all. I decided to wear my stripes with pride. Lost about 35 pounds,* gained new perspective on my life, gained new attitude and appreciation for the goodness of God.
*Just a friendly reminder, if you say I am "lucky" or you are "jealous" because I lost weight then I will punch you in the face. In love, of course :)
Here is our "before" family picture during Christmas...
And again, here we are now. You might notice a trend with the boy. He's not exactly cooperative.
Thank you, thank you, thank you from the bottom of my heart for your prayers. The way you all rallied around me and cheered me through was amazing. I have the best support system. Thank you for joining us on this cancer journey!

Saturday, February 20, 2010

First haircut

During my treatment, Jason and Granny took Brady for his first official haircut, which made him look about 12 years old. I've trimmed up his hair myself quite a few times, but this was his first trip to the salon. I couldn't keep up with the mop any longer, as he was looking rather neglected and not like a baby version of Jim Halpert like I hoped! Although I was sad that I couldn't go with them, I practically pushed them out the door as the mop was gaining a life of it's own. Jason took about 50 pictures so I didn't really miss much!

"Before"
"During" (yes, he has TWO lollipops)
"After" - handsome boy all ready for sixth grade!

Sunday, February 14, 2010

Calling all Prayer Warriors

Still here, and I apologize for being a bit sporadic with my blog posts. I still can claim lack of energy, right?

This week is my final week of treatment - only five more treatments - I am so excited for Friday to get here! However, my treatments are now a source of anxiety for me, as my pain continues to increase. But the biggest source of fear for me is the claustrophobia of being trapped in the mask, unable to move, with a slightly compromised airway.

If you are able and available, I would appreciate your prayers this week from 4:00 PM to 4:15 PM EST. This is when I am actually in treatment, and when my anxiety is at its highest. I am usually on the brink of panic during this time - it is hard for me to describe since I've never struggled with anxiety before. My doctor and nurses have been extremely understanding. They now allow Jason to go back into the treatment room with me until they start radiation, and then he goes to the patient waiting room (as opposed to the lobby, where all the other family members must wait) and prays for me the whole time. I am sure he would love all you prayer warriors out there to join him. I know I would appreciate it too!

Jason's mom left yesterday. Brady had so much fun with Granny - we are so thankful for help and her willingness to put her own life on hold to take care of us! My mom arrived just as she left, and Jason only had to make one trip to the airport to complete the "Mom Swap" - God sure worked out those details!

Thanks again for praying for us. We have consistently felt love and support from all of you, and we are so thankful.

Love,
Angie (for the Hubbies)

Tuesday, February 2, 2010

Update From My Couch

I think this couch might be taking on the shape of my rear. Just a frightening thought for you.

A lot of things have happened since last week, and I apologize for not updating sooner. I now have my feeding tube and am no longer starving. However, I am still not where I need to be with calories. I am supposed to be at five cans of Ensure per day and I am lucky to hit two cans. With my touchy stomach and all of the pain meds I am on, I am very careful not to have too much lest I end up getting sick! I am adding a bit more every day, so I'll get there.

I am still struggling with pain, but not nearly as bad since I have the goooooood drugs now! I still have the mouth sores, but at this point the pain that I have is from my mouth, tongue, face, etc which are all burned from the radiation. I am on a pain patch now (I think it is called fentanyl?) and I also have liquid morphine for any break through pain. So far, the patch has worked great. Today was the first day I wore the pain patch, and I only needed three extra shots of morphine to make it through the day. This is down from taking morphine every two hours all day long, and counting down the time in between. I am very thankful for the patch and my doctor who was willing to try different things with me until something worked. At this point, if my pain gets worse, they can increase the dosage for me. I am really hoping this is the last pain prescription I will need!

By the way, I only have TWELVE radiation treatments left! I am starting to see the light at the end of the tunnel! Unfortunately, my side effects will last for long after my treatment is over. I will probably need the feeding tube for a few months, as well as pain meds. But that is OKAY! I'll be on the road to recovery!

Linda left on Saturday and Jason's mom, Alice, is here this week and next. Brady LOVES having so many different people to play with. He is becoming quite the ham and loves an audience. He seems to learn something new each day and is really into books lately. He brightens up the world for me!

Throughout all this, the Lord has been so good to us, and has provided for us and cared for us better than we could ever imagine. We are so blessed, and all our praise goes to HIM. (I know I say that a lot, and I really mean it)

Love,
Angie (for the Hubbies)

Auntie Linda and Brady having a cozy morning :)